Miscellaneous Medical Conditions
Please note: Being listed here is not per se an endorsement of any particular site or email list. I have included annotations for those sites or lists that I am familiar with and strongly recommend.
Asthma and Allergy Foundation of America
Chronic Fatigue Syndrome (CFS)
Epilepsy Foundation of America
Parents HLHS page - information on Hypoplastic Left Heart Syndrome (includes
links to other sites for congenital heart problems) and information on ordering
a handbook for parents.
KidPower Family Support Resource is a nonprofit organization for families
whose children are mildly affected by cerebral palsy and/or other disabilities.
Email Lists/Bulletin Boards
KidPower is a support and information list for families whose children are
mildly affected by cerebral palsy and/or other disabilities.
POFAK (Parents of Food Allergy Kids) is an email list for families of
children with severe food allergies.
Overwhelmed by all the terminology and abbreviations? In addition to the
acronyms page at this site, there's an excellent
Dictionary for Parents of Children with Disabilities (in PDF format, you need
to read it) at
http://www.usd.edu/cd/dictionary/. It is also available as a website
(but may take a long time to load) at
"Children require guidance and sympathy far more than
Site copyright 2000-2005,
Meredith G. Warshaw